Lazarus . . .
I realize it’s been almost two months since I last wrote a post. As we enter an early spring, things are getting back to normal. My energy is good, I’m back at the gym, and my social life has actually been more active. It took a while for me to move past the last trauma of the pain and the surgery. The facial numbness is profound and strange but there is no pain. For the first month or so I had a few strange nerve sensations that gave me some anxiety but they seem to have settled down.
I decided to leave the business partnership I entered into last year as I realized I just didn’t have the drive to help people in the way I used to, especially after the last surgery. I continue to volunteer for the MS Society by facilitating a monthly group on The Wahls Protocol. I am so also a volunteer for the Trigeminal Association of Canada for people in BC, as I am occasionally asked to correspond with people who have TN from MS or people who are considering going to Winnipeg and Dr. Kaufmann for help instead of waiting for 2-3 years for Dr. Honey here in BC.
I have lots of ideas about things I want to do. So, rest assured that I am still here, I’m doing well, and incredibly grateful for my good fortune with my home life and my team of support.
I was contacted this past week to participate in the volunteer patient program at VGH again. I had a session with neurology students and the instructor was the head of the MS Clinic at UBC. The next day I had a session with second year medical students taught by a wonderful neurosurgeon who really gave me the opportunity to tell my story. He was very interested in my surgery and he understood that it indicated that the TN I had was profound as it is a rare procedure.
Upcoming are my annual MRI on March 12, a speaking engagement for the meeting of the Trigeminal Association BC Chapter meeting, tentatively scheduled for April 2. And I get to see my lovely neurologist on April 14.